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Evidence is emerging to demonstrate the value of patient engagement throughout the medicine development lifecycle. Consequently, many pharmaceutical companies are adopting more patient‑centric approaches and a range of tools are available to support this. There are many case studies highlighting effective patient involvement in clinical trial design, or in the development of patient education materials – but we rarely see patient involvement in company-sponsored medical publications.
Patients have valuable and unique insights into key areas such as the lived experience, treatment journeys, and unmet needs. Their perspectives should be captured to strengthen the peer-reviewed medical literature. In this session we will highlight the opportunities for patients to become authors and review some of the tools and training available to support them. Using a recent case study, we will show how patients can and do add value as co-authors of company-sponsored publications.
- Discuss the value of patient perspectives in company-sponsored medical publications
- Understand the opportunities for, and the barriers to patient authorship
- Highlight some of the tools and training available to empower patients to become authors
- Debate the best approach to patient co-authorship of company-sponsored publications using a recent case study
Moderator: Dawn Lobban PhD
Global Lead, Patient Partnerships, Envision Pharma GroupMedical Affairs Professional Society
Speaker: Veronica Porkess
Publication Lead, Rare Diseases, UCB Pharma Ltd.Medical Affairs Professional Society
Speaker: Zack Pemberton-Whiteley
Chief Executive Officer, Leukaemia CareMedical Affairs Professional Society