Patient Centricity

Focus Area Working Group

The Medical Affairs Professional Society (MAPS) Patient Centricity Focus Area Working Group are to ensure understanding of the current state of patient centricity as it relates to the Medical Affairs function, and the needs of Medical Affairs professionals; to raise awareness among Medical Affairs professionals of the current state of “patient centricity” in the biopharmaceutical/device industry; to To define how Medical Affairs specifically can play a role in increasing patient centricity in their organization; and to identify current barriers (real and perceived) to implementing patient centric approaches and propose solutions to overcome them. 

Activities: We will organize patient centricity-focused workshops for MAPS meetings in North America, APAC (Asia Pacific – China/Japan), and EMEA (Europe, Middle East, Asia) regions. We will collaborate within the Focus Area Working Group members and with external advisors and experts, including patients and patient advocates, to develop original content for webinars, podcasts, eLearning courses, and/or white papers. In addition, the working group will periodically contribute cogent and timely content on relevant patient centricity-focused topics for the MAPS publication, Elevate magazine. Most importantly, we will provide a supportive resource for all Medical Affairs Professionals, to expand their knowledge, understanding, and ability to support or lead patient-focused activities in their organizations. ​ 

Latest Podcast Episode

Description:

  1. explain what publication plain-language summaries are and how patients find them useful
  2. share patient experience of being involved in reviewing PLS, and key points to consider from a patient’s perspective when developing PLS

Members

Tricia Gooljarsingh

Tricia Gooljarsingh

Vice President of Medical Affairs

Lead

Janssen Logo
Roslyn Schneider

Roslyn Schneider

Principal

RozMD Patient Affairs Consulting LLC

Lilly Stairs

Lilly Stairs

Founder and Principal
Patient Authentic logo
Len Valentino

Len Valentino

President and CE
National Hemophilia Foundation Logo
Alexandra Safronova

Alexandra Safronova

Former Medical Director
Boehringer Ingelheim
Isabelle Bocher Pianka

Isabelle Bocher Pianka

Chief Patient Affairs Officer
Ipsen Logo
Xuan He

Xuan He

VP, Head of Data Generation & Business Excellence
Bayer Logo
Karen King

Karen King

Head of Medical Strategy, Growth & Development
CMC Logo
Tracy Frary

Tracy Frary

Integrated Evidence Head, Immunology
Janssen Logo
Heidi Katz

Heidi Katz

Principle

HJK Consulting Group LLC

FAWG Overview

Patient Centricity Updates

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Aligning Healthcare Professional and Patient Education: Challenges and Risks

Join this session to understand aligned HCP and patient education activities from the perspective of the current landscape, Medical Affairs support for aligned medical education and risk mitigation ensuring transparency, fairness and lawfulness.
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Highlighting Project ECHO: A model to improve patient care & build health system capacity

Join this session to understand how an effective digital tele-mentoring program builds local capacity in rural and underserved areas by empowering healthcare professionals to treat complex diseases that have historically only been treated by specialists.
Open Health 2 Featured
Open Health 1 Featured
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Patient as Priority: Designing and Refining Internal Medical Affairs Training to Support Patient Outcomes

In partnership with experts from Open Health and Janssen EMEA, this episode of the MAPS podcast series Elevate details how to position patients as priority in designing and refining internal training.
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Partnering with Patients in Asia Pacific

This webinar from the MAPS APAC region shares best practices for effectively leveraging patient insights to inform decision making.
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Beyond Patient Centricity: True Patient Partnership in the Pharmaceutical Industry

This article provides a cross-functional perspective on the current state of patient centricity in our industry as well as practical examples for Medical Affairs professionals to implement patient-focused approaches in their everyday work.
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Patient Engagement in Drug Development: An Opportunity for Medical Affairs

Understand the numerous ways in which partnership with patients can impact the development and commercialization of medicines; the current “patient centric” landscape in pharmaceutical drug development; recent findings related to the value of patient-centric trial design, and innovative approaches to engaging with patients across the study continuum.