Patient Centricity

Focus Area Working Group

The Medical Affairs Professional Society (MAPS) Patient Centricity Focus Area Working Group are to ensure understanding of the current state of patient centricity as it relates to the Medical Affairs function, and the needs of Medical Affairs professionals; to raise awareness among Medical Affairs professionals of the current state of “patient centricity” in the biopharmaceutical/device industry; to To define how Medical Affairs specifically can play a role in increasing patient centricity in their organization; and to identify current barriers (real and perceived) to implementing patient centric approaches and propose solutions to overcome them. 

Activities: We will organize patient centricity-focused workshops for MAPS meetings in North America, APAC (Asia Pacific – China/Japan), and EMEA (Europe, Middle East, Asia) regions. We will collaborate within the Focus Area Working Group members and with external advisors and experts, including patients and patient advocates, to develop original content for webinars, podcasts, eLearning courses, and/or white papers. In addition, the working group will periodically contribute cogent and timely content on relevant patient centricity-focused topics for the MAPS publication, Elevate magazine. Most importantly, we will provide a supportive resource for all Medical Affairs Professionals, to expand their knowledge, understanding, and ability to support or lead patient-focused activities in their organizations. ​ 

Latest Podcast Episode

Description:

  1. explain what publication plain-language summaries are and how patients find them useful
  2. share patient experience of being involved in reviewing PLS, and key points to consider from a patient’s perspective when developing PLS

Members

Tricia Gooljarsingh

Tricia Gooljarsingh

Vice President and Head of Medical Affairs, Clinical Communications and Patient Advocacy

Lead

Editas Medicine Logo
Isabelle Bocher Pianka

Isabelle Bocher Pianka

Chief Patient Affairs Officer
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Tracy Frary

Tracy Frary

Integrated Evidence Head, Immunology
Janssen.logo
Xuan He

Xuan He

VP, Head of Data Generation & Business Excellence
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Heidi Katz

Heidi Katz

Principle

HJK Consulting Group LLC

Karen King

Karen King

Head of Medical Strategy, Growth & Development
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Alexandra Safronova

Alexandra Safronova

Former Medical Director
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Roslyn Schneider

Roslyn Schneider

Principal

RozMD Patient Affairs Consulting LLC

Len Valentino

Len Valentino

President and CE

FAWG Overview

Patient Centricity Updates

myhealthteams chronic conditions
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Benchmarking patient centricity in Pharma across its many stakeholders

The webinar will provide a snapshot of insights on what matters to patients and how pharma fares in terms of patient centricity based on a new patient centricity benchmarking survey piloted in 2019.
USNHC Medical Affairs Webinar
HCP and Patient Education Challenges MAPS Medical Affairs Webinar
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Aligning Healthcare Professional and Patient Education: Challenges and Risks

Join this session to understand aligned HCP and patient education activities from the perspective of the current landscape, Medical Affairs support for aligned medical education and risk mitigation ensuring transparency, fairness and lawfulness.
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Highlighting Project ECHO: A model to improve patient care & build health system capacity

Join this session to understand how an effective digital tele-mentoring program builds local capacity in rural and underserved areas by empowering healthcare professionals to treat complex diseases that have historically only been treated by specialists.
Open Health 2 Featured
Open Health 1 Featured
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Patient as Priority: Designing and Refining Internal Medical Affairs Training to Support Patient Outcomes

In partnership with experts from Open Health and Janssen EMEA, this episode of the MAPS podcast series Elevate details how to position patients as priority in designing and refining internal training.
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